Are you asking about ARSA? One of my twin is diagnosed with ARSA and my previous gynae asked us to do amniocentesis when all other organs are normal. I was hesitant as there's a risk of miscarriage so I spoke to a high risk specialist and he calculated that our risk of baby having issue will be 2-4% so we decided not to do the amniocentesis and just believe that baby will be fine. The high risk specialist did mention that there's a lot of ARSA cases in which baby turned out to be completely fine.
My first kid was detected with the extra vessel in the heart during my details scanning. Now she is 8years old and was following up in hospital for every 1 to 1.5yrs review. So far no major concerns and doctor only advice that she can’t do diving activities only. Not to worry mummy… 💪🏻
My 20 week scan showed that bb had an aortic valve stenosis and a slightly smaller right ventricle. Idk what are the odds of bb surviving if born.