NF1 children

Any parents here is handling a child with NF1? My child is recently diagnosed with that condition.

Anonymous

2 Replies

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Hi, i know this post has been so long. But how’s your child now with Nf1? My husband is diagnosed with NF1 at the age of 23. Our baby born 5 months ago has cafe au lait spots which are actually likely to be NF1 also 😞 wanted to know how’s your experience so far.

Super Mum

Hi there, I don’t have any experience with NF1 but you must be worried. Hang in there mummy! I hope you get the information and support that you need. Take care!

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